Saturday, June 30, 2012

T-10 and Holding

For those of you who are following us, we are still in a holding pattern.  Joe had his kidney infection test done at the dialysis unit and the results were supposed to be sent directly to the Mayo Clinic.  We haven't heard from them, so we are thinking that no news is good news. 

The boys have begun to ask more and more "how many more days".  I was planning to do a cutesy, pinterest countdown, but they insisted on making a good ol' fashioned paper chain.

They cut it out themselves and stapled it together.  It now has 10 loops.  Ten.  A number that can be counted on your fingers.  So close.

And not a moment too soon.  We used to have good days and bad days.  Now, we just have bad days and, if we are lucky, not-so-bad days.  His "off" days have been filled with sleeplessness, pain, discomfort, and extreme exhaustion. 

where Glory meets my suffering